HAPPY NEW YEAR!

Hi everyone happy new year! I hope that this year all will be well with your family.

Suggestions Helpful

Hi everyone! Does any one have suggestions on how to get Adam off the pacifier and how to make him sleep in his own bed all night without coming in to mine. Just can't sleep with him no more he is a bed hog and will kick you out if he can. Every time I ask the doctor's they tell me he still needs it is soothes him but he is now 2 years old and needs to come off.

Teeth Removal

Adam did really good with his 4 front teeth being removed. He is upset right now because he can not drink from a sippy cup. O well I guess its a good time to get him off of them now. The dentist said there is nothing that anyone can do with the teeth when the child is on pediasure. No matter how much you brush them it still will cause the teeth to decay.

Finally Back

I have been really busy after mother's day. Especially with summer and doctors appointments. I hope all is going well with our little heart friends. I have a question has anyone had this problem with pediasure making the child's front teeth bad. The only reason I asked is because Adam has to get his 4 front teeth pulled they said it was from pediasure. They are not going to put him to sleep they are going to numb his mouth. Poor little guy.

Happy Mother's day

Happy Mother's day to all the heart mommies! Thank you all for your suggestions on Adam. I think that the pediasure is keeping the weight steady and he is eating a little now.

Answers needed please

Hi Everyone! I am having a problem with Adam eating now. Before the open heart surgery he had a very good appetite. But now after the surgery he is refusing to eat. Has anyone had this problem and if so what did you do to get them to eat? He only weights 21 lbs and 12 oz I am scared of him losing more weight that he can not afford to lose.

Home Sweet Home

Hello Everyone! Sorry to keep everyone waiting on information. Adam is doing good now that he is home. We all were scared because his blood pressure was really high and they would not let him come home without it lower. I was really scared to bring him home with his high blood pressure. So they put him on vasotec meds and it worked! Here are some pictures. Before surgery

After Surgery

After tube came out

Waiting to go home.

Sorry for Late Update

Hello and Sorry for not updating the laptop batteries died. Well Adam came through like a champ. The surgery took 9 hours because the Dr. had done 4 things to his heart. He just got off of the vent today. He is doing good. They are worried a little because his pulse ox is not high it is in the high 60's to low 70's. Before the heart surgery it was in the 80's. I will upload pictures when I get home. Thank you all for your prayers and support. They were felt.

surgery update

Third updated: Adam is off the heart lung machine. He is doing good. Thank you for your prayers they are being answered.

Second updated: Adam was stable and they were hooking him up to the heart lung machine.Next updated is in 1 hour.

Hello everyone! The doctors took Adam back at 8:30 a.m. We will get a phone update at 10:00. Will update then. Please continue to pray for him.

prayers needed

Hello Everyone! Tomorrow is Adam's big surgery day. Please pray that god would keep him safe during the surgery and that he has a safe recovery. Please also pray for me and my family. I need strength to walk him into the surgery room and let them put him to sleep. I am so scared I can't even sleep now. Tomorrow I will be giving updates on the blog when I find something out or when I receive updates. Thank you to everyone who has been praying for him.

suggestions please

Does anyone have any suggestion on how to clean Adam's incision after surgery. I think it might be impossible to clean it because when I try to get him dressed he runs away. Do I give him a bath in the tub or sponge bath? Please help.

Prayers Answered

Thank you to everyone who prayed for Adam. The prayers were answered! They said he is ready for the Glenn Shunt (open heart surgery) on Wednesday. Another scary moment. Here is some pictures of him before and after the Heart Cath.
Before
After

Prayer Request

Hello everyone I hope you had a nice Easter. Adam is going in for a heart cath on Tuesday at 8:00 a.m. Please pray for him during the procedure that he will do alright. I am getting a little scared.

Big Boy

Little Adam likes to eat at the table instead of his highchair. He refuses to eat if we put him in there. I am having a problem with him choking on his food even though it is cut up really small. Has anyone had this problem with their children if so what did you do.? My son Justin had his speech therapist here at home and Little Adam started choking and she had to get it dislodged. Here is a picture of him at the table.

The Second Call

Hello everyone! I just got the second call for Adam's surgery. It is going to be on April 14th at 8:00 a.m. we have to arrive at the Cleveland Clinic at 6:30 a.m. he is the first case.

Just Got The Call

Hello Everyone! I just got the call that his heart catherization is April 6th. The procedure is going to take 2 to 3 hours. This time it is longer than when he was 2 months old. I am praying that everything will go well. Will update when I get the call for the open heart surgery.

Cardiologist Appointment Today

Hello Everyone! Thank you for praying for Adam. The heart doctor said that his echo and EKG looked good today. He said that he is sorry for scaring me about Adam going into respiratory distress. But he pushed up his surgery month though instead of May or June it will be in April. I am waiting for a call to find out what date. He has to have a heart cath first then 1 week later his open heart surgery. But here is some pictures I took.

I am waiting patiently for my ECHO and EKG

Daddy had to hold my hands down I did not like this!

I am being a good boy now! Just waiting to see the doc.
I guess that the screaming and kicking made my mom and dad crazy! Look at the big cup of milk shake it is bigger than my head.

Prayer Request

Hi Everyone! I just got off the phone with Adam's cardiologist. He wants to see Adam Friday instead of the 15th of this month. He thinks that he is going into respiratory distress. Due to the band they have on his pulmonary artery. Please pray that he will not go into respiratory distress and that he does really well until Friday. I am so scared right now that I do not think that I am going to sleep tonight.

A Blanket

I finally got my camera fixed. A lady made this blanket for him. She does blankets in kind of thing that your child likes. It is for special children that has health problems like a CHD or any other problems. She does it for free in her son's memory since he has all kinds of problems. The website is on my page on the side. I think that it takes someone to raise a special child regardless what is wrong with the child. Now a days the doctors just say to terminate the pregnancy because there is something wrong with the child and his standards that the child may not live. But they are not God and only he knows if the child will live or die. I feel like just because the child has Special need or their bodies are made different does not mean any thing at all. They should be treated like a normal child regardless. I understand that there are certain limitations that they can't do.

Question

Question for anyone! Has any one had a child with open heart surgery in the summer time? Is it hard for them not to scratch the wound and do they hurt when the sweat gets in to the healing wound. How did you keep it dry while it was healing. Because the cardiologist told me the last time that he would have his surgery in May or June. This is before they told me to come sooner to see them.

february 18th

I just recieved a phone call from his cardiologist. He wants to see him sooner than April. He want to see him in March. I am really scared because when I took Adam to his pediatrican his pulse ox was in the low 70s which is not like him. Please send some prayers up for him.

Feburary 4 2010

Hi everyone! The eye doctor said that his eyes were OK but we have to go back in June. To decide if they are going to put a patch on his eye for 1 to 2 hours a day.

January 30th 2010

Hi everyone! I have a prayer request please pray that Adam's eye doctor goes well on Tuesday. If his eye is not any better than he might to have surgery on it.

January 26th 2010

Sorry I have not posted in a while. Little Adam is getting his back teeth in and he is so cranky. Does anyone have a suggestion about what I can do to help him with the pain other than oral gel. He can not seem to get the frozen wash cloth in the back of his mouth. :(

January 17 2010

Sorry it has taken me so long to post this. We had a lot of things going on since the 11th. Adam has been sick for almost 2 weeks now. :( I feel so bad when little kids gets so sick. Other than that he is doing so good so far.

January 11 2010

Snow Snow and more Snow! I wish it just quite! Adam is sick right now :( I think he might be getting his back teeth in. Poor baby I can not give him oral gel for teething. That's the bad part of his teething. But my mother gave me a suggestion to put apple juice on a wash cloth and freeze it than give it to him so I am going to try that! I hope it helps. Please keep Little Logan and Little Derrick in your prayers since they will be having open heart surgery real soon!

January 4 2010

Adam started to take a couple of steps. I was so excited about that until he fell down and got his little face on the floor. His nose started bleeding I think I cried more than he did. I guess I am a big baby! lol But after I got him cleaned he got up and took a few more steps.

January 3 2010

Poor Adam is sick he had his second shot o the N1H1 shot. After that he got really sick. I feel so bad for the little guy :( Has anyone had this reaction with the N1H1 shot?

January 1 2010

HAPPY NEW YEAR! TO EVERYONE